My 16 year old daughter's path of being a teenager with Crohn's disease and hypermobility syndrome from her mother's perspective. Crohn's disease is a chronic inflammatory disorder of the gastrointestinal system, and this blog may not always be pretty. We'll probably talk about poop, pain, disgusting tests and disturbing treatments, so don't read if you're squeamish.
Tuesday, March 5, 2013
NG tube tape art
My daughter is very creative. Each day she colors the Hyfix tape that she uses to attach the tube to her cheek. I talked her into letting me get a picture of it today. She has had characters and creatures from her Legend of Zelda Wii game, a sword, and today a hummingbird. I hope to get more pics to add to this.
The Hyfix is white and all the drawing and color is with colored pencils.
By the way, Pumpkin had another weigh in today. She is up 12 oz from last week - a total of 3 lbs in 4 weeks. (Last week she had lost about a pound, so I'm glad she's back on the upward move).