Tuesday, December 18, 2012

Still no answers

Pumpkin had her procedure last week and came through okay.  It took her about 5 days to get any sort of appetite back, which is hard for a mama to watch when is already so underweight.  I've spoken with the gastroenterologist a couple times this week.  She is still leaning towards Crohn's disease as a diagnosis, although the testing has not been conclusive so far.  Today she is undergoing another cleanout, and tomorrow she and her daddy will fly to Anchorage and do what is called a "capsule endoscopy".  Essentially this procedure is where she swallows a dime size capsule that has a camera inside it.  Is a camera goes throughout her GI system it takes thousands of pictures.  This enables the doctors to see inside her small bowel.  On her colonoscopy Pumpkin had one small area that was suspicious for Crohn's.  The gastroenterologist thinks that she probably has much more widespread disease in her small bowel, and feels this test may be helpful in nailing down the diagnosis.  They will fly back tomorrow night.

Tuesday, December 11, 2012

We start our journey to where we don't know

Pumpkin and I are in Anchorage, 3-4 hours drive from our home, for a few days while she sees a pediatric gastroenterologist and undergoes some testing for failure to gain weight and delayed puberty.  Yesterday she saw the doctor who is suspicious of Crohn's disease.
This morning she had an MR endoscopy (nasty contrast didn't go down well).  Tomorrow she will have an upper and lower endoscopy (scopes).  Today we are doing the prep.  She had to take two little laxatives (dulcolax) and now is having to drink an entire bottle of miralax split up in two 32 oz bottles of yellow or green gatorade.  Already her stools are clearing up.  I didn't think it would take too long since she hardly eats.

After she recovers tomorrow from her procedures, we will head back to Soldotna.  A storm is coming in tomorrow but I am hoping to beat it.  Our test got moved up from 1:00 pm to 10:30 am, which will be helpful to keep us from missing it... 

Thanks for your good thoughts for Pumpkin and for your prayers.