Monday, February 11, 2013

The effect of Crohn's disease on me

I know this blog isn't about me, but Pumpkin's disease does affect me. 

I think I've become obsessive with her health.  How many cans of formula did she drink today? How does she feel?  Is she having diarrhea?  Are her stomach aches from her formula or from her Crohn's?  Is she on the right formula?  Should we be starting another med to keep her in remission?  Are we doing enough?  Are we doing too much?  Is this going to help?  Is this going to hurt?  Is she gaining wait?  Is she getting enough calories?  Is this Crohn's new or is it old for her?  If it is new, why has she had trouble eating her whole life?  If it is old, why didn't it show up on her biopsies?  Why were the endoscopies and biopsies clear and why the video endoscopy show inflammation and ulcerations throughout the colon 9 days later?

I wake up frequently at 4-5 am worrying.  Trying to figure it all out.  I can't read my Torah portion (Bible study) or even read a book without falling asleep.  I'm tired at work and have a hard time thinking about other stuff.

Pumpkin's homeschooling is frustrating me.  DH is not keeping track of her.  She is not doing all her work.  Last week she did one out of 8 assignments in history and literature.  Yes, granted she was in the hospital 1.5 days, but still she had 3 days at home.  Aargh!  I don't want to send her back to school.


  1. So sorry, I think I would be doing the same thing, thinking way too much on it all. I'll be praying for all of you.

  2. Carol, I am the same way worrying about Devynn. (((((hugs))))


    I came across your blog from a farming link. I would like to offer some hope...maybe you've explored this area of nutrition, but it's worth looking at. I do not have digestive problems, but many that do, have gotten Nutribullets and seemingly see great results. (I have one and got it for simply an easy method to get 8-10 servings of fruits and vegetables daily).

    As a mother, I can only imagine what you are going through.

    Another thought is the book "Minding Your Mitochondria"...not specifically dealing with GI issues, but worth a look. I'm sure you can google it and find info about the book and author who is a recovering MS survivor and a medical doctor at U of Ia Hospitals.