After my youngest daughter was diagnosed with a corn allergy, we finally started making strides towards health improvements for her. This got me wondering about Pumpkin and what might have been missed. I asked her allergy/asthma doctor about whether she had been tested for corn too. She hadn't. We set her up in June for further food allergy testing, but had to wait until October for the appointment. We had the appointment this last week, and discovered some shocking results. Unlike her sister, she is not allergic to corn. No, she is allergic to one of the mainstays of her diet: potatoes! Not only that, she is also allergic to broccoli, chocolate and almonds. We've begun the process of eliminating these from her diet, which isn't easy when you are already gluten intolerant, and many of the GF foods you enjoy have potato or almond flour as a substitute. From what I read, potato flour can also be found in cheese, modified corn starch, MSG, maltodextrin, yeast and other nonpotato type of words. So far, we have already seen improvement in her belly cramping, and I'm sure her diet isn't completely clean yet. Interestingly, the one night last week that she had the most abdominal pain was after she drank an Ensure before bed. Of course dark chocolate is the only kind she likes... Can you say homemade, potato free, corn free, gluten free, almond and chocolate free Thanksgiving? Hoo boy!
As I mentioned in a previous post, in October Pumpkin was also diagnosed with postural tachycardia. She was falling down and passing out sometimes. It has improved with increased fluid intake and intentional daily exercise. POTS (postural orthostatic tachycardia syndrome) is common in hypermobility syndrome. I think I will look further into MCAS in light of Pumpkin's recently discovered food allergies. I think MCAS tends to pop up in these patients too. Just wanting to cover all the bases.
This past month or so, Pumpkin has been having lots of abdominal cramping, anal sores, intermittent diarrhea, 5 lb weight loss and more joint pains along with the rest of her health problems. Her blood work, as usual, showed no elevations in crp or sed rate. CBC and CMP was also normal. She'll see GI next week. Her rheumatologist is having her increase her 6MP to see if it will help. Usually GI isn't very helpful, but we'll see what she has to say.
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