The evening of my last post, I ended up taking Pumpkin to the hospital. Her c.diff came out positive the next day. She spent 5 days inpatient receiving IV steroids, antibiotics and TPN given peripherally. She started coming around. When they sent her home they gave her enough antibiotics (Flagyl again) for a total of 14 days, and put her back on prednisone. They also increased her 6MP by 25%.
Since being home she has gained weight from 98 lbs at discharge up to 11l lbs, yesterday! Her abdominal pain has resolved and she is having 1-2 formed or hard stools/day. She is weaning of the prednisone by 5 mg every 5 days.
She has been slowly increasing her Lamictal and has not had any more full on seizures, and has had an increase in partial seizures, but those are declining as we go up in dose.
Her leg swelling has come back.
Her face is swollen, with a double chin, and her acne is getting pretty noticeable. These things we attribute to her prednisone.
About half of her hair has come out, probably due to all her stress. She thinks it has stopped coming out, however.
Yesterday we went to followup with the GI doctor. She wants to see if her adjustment of 6MP has resolved her problem and is not planning on putting her on a biologic yet. She promised that if Pumpkin flares again she won't make us run the gammet again, but will change her medication right away. Pumpkin was pretty distraught about this because she doesn't want to have to get bad again.
So sorry. Praying that it doesn't get that bad again, and that the swelling goes down.
ReplyDeleteThanks for your continued prayers, interest and concern.
DeleteThanks for your continued prayers, interest and concern.
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