My 16 year old daughter's path of being a teenager with Crohn's disease and hypermobility syndrome from her mother's perspective. Crohn's disease is a chronic inflammatory disorder of the gastrointestinal system, and this blog may not always be pretty. We'll probably talk about poop, pain, disgusting tests and disturbing treatments, so don't read if you're squeamish.
Tuesday, December 18, 2012
Still no answers
Pumpkin had her procedure last week and came through okay. It took her about 5 days to get any sort of appetite back, which is hard for a mama to watch when is already so underweight. I've spoken with the gastroenterologist a couple times this week. She is still leaning towards Crohn's disease as a diagnosis, although the testing has not been conclusive so far. Today she is undergoing another cleanout, and tomorrow she and her daddy will fly to Anchorage and do what is called a "capsule endoscopy". Essentially this procedure is where she swallows a dime size capsule that has a camera inside it. Is a camera goes throughout her GI system it takes thousands of pictures. This enables the doctors to see inside her small bowel. On her colonoscopy Pumpkin had one small area that was suspicious for Crohn's. The gastroenterologist thinks that she probably has much more widespread disease in her small bowel, and feels this test may be helpful in nailing down the diagnosis. They will fly back tomorrow night.
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