Here's an update on my sweet Pumpkin. She is doing great. After 2 weeks of being on Prednisone, we found out that it wasn't her Crohn's flaring because her fecal calprotectin test was better than ever! It took another 15 days to wean off the pred, but she did well. We found some enteral nutrition that she was able to drink to help her put back on the weight, and I am happy to say that she has finally gotten through the 90 lb threshhold weight. She is doing super at her homeschooling, keeping a good attitude, has a nice group of friends, winning poster contests... Life is good! She hasn't had any seizures again that we've witnessed either!
Recent stat summary:
*Currently age 14, Crohn's diagnosis 1-2013 - age 13.
*EEN finished 4-5-13, gained 20 lbs and did great until she got strep throat and a virus in 7-2013 and lost 7.5 lbs. Back to 90 lbs 10-8-13, up to 92 lbs 10-15!
*Prednisone 40 mg daily starting 9-14-13 done 10-11-13
*Culturelle 1 daily starting 9-3-13, stopped 10-24-13 when she ran out, seems to be doing well, will see how she does without.
*6mp 50 mg daily
*Vitamin D3 1000 IU daily
*Zinc gluconate 50 mg 4 days a week
*Supplemental EN (1500 cal/day) - currently 3 cans Dark Chocolate Ensure and 3 cans Peptamen Junior orally.
